A new diagnosis can feel overwhelming — but you’re not alone.
From the very beginning and through every stage of life, we walk alongside families in the Down syndrome community with encouragement, connection, and care. Whether you’re looking for trusted resources, meaningful relationships, inclusive programs, or strong advocacy, we’re here to support your journey today and always.
If you or someone you love has recently received a Down syndrome diagnosis, know this: when you’re ready, we’re here. To listen. To guide. To walk beside you every step of the way.
Right now, your emotions may feel intense and that’s completely normal. A new diagnosis often brings unexpected feelings, but we want you to know that your baby is more like other babies than different. Your child will bring joy, laughter, and countless moments worth celebrating. And you don’t have to figure any of this out alone.
We’re here to support you in ways that feel right for you, including:
Connecting you with a parent mentor through our First Call Program.
Introducing you to other families with children ages birth–5 who understand exactly what you’re feeling.
Linking you with trusted local resources, including the Down Syndrome Center of Western PA.
Sharing our weekly newsletter.
Visiting you with a welcome box filled with gifts for you and your baby
First Call Program
For new parents with babies with Down syndrome, having an opportunity to speak with other parents who have experienced a similar journey to you can be helpful. The First Call Pittsburgh Program is a volunteer, local group of trained parent mentors from right here in Western PA. DSAP services and resources are free and confidential. First Call Pittsburgh strives to match new parents with parent mentors that have similar experiences. Our parent mentors are available to answer any question in a safe space. We are here for you and want to encourage you to process your thoughts and feelings. To connect with a First Call parent mentor, you may email firstcall@dsapgh.org or call/text (412) 552-4972.
Helpful Resources for New & Expectant Parents
Down Syndrome Medical Care
We have specialized medical care at the Down Syndrome Center of Western PA and they see individuals with Down syndrome across the lifespan. To reach out to the center directly, email DownSyndromeCenter@chp.edu or call (412) 692-7963.
Reading Materials
- Understanding a Down syndrome Diagnosis – For patients first learning about a prenatal screening/testing and a suspected diagnosis of Down syndrome. The booklet shares information in both English and Spanish.
- Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome – Offers resources about Down syndrome for expectant parents preparing for the birth of a baby with Down syndrome. The booklets are available in both English and Spanish.
- A Promising Future Together: A Guide for New and Expectant Parents – Provides a comprehensive overview of Down syndrome including sections on healthy starts, early intervention therapies, how to find support and care for your family and what the future holds for your child. Additionally available in Spanish, Russian, Chinese, and Vietnamese.
- Down Syndrome Pregnancy – Offers free web resources about Down syndrome for new parents of a child with Down syndrome.
- Welcoming a Newborn (Also available in Spanish) – Available to order or free to download through the links above.
Breastfeeding & Down Syndrome: A Comprehensive Guide for Mothers and Medical Professionals - Available for order or free to download.
Ashley Fina Coaching - Specialized Counseling and Consulting for Parents Who Have a Child with a Disability. She offers specialized virtual counseling in the comfort of your own home. No traffic to fight or babysitters to find. Virtual counseling is a powerful mode of transformation. Most insurances accepted!
The National Down Syndrome Adoption Network – We understand that not all expectant families feel they are able to meet the needs of children with Down syndrome. The National Down Syndrome Adoption Network provides information to families who may be seeking alternatives to parenting. The network currently has 50 families on the NDSAN Registry who are approved and ready to adopt a child with Down syndrome.
Family Connection Groups
There are several Family Connection groups to get involved with and these are allow you to connect by children's ages and specialty groups. DSAP also hosts Facebook groups that coincide with the Family Connection groups to continue to connect and support each other.
We Want To Meet Your Family!
We offer a variety of programs to meet your needs. To learn more about each of our program offerings, check out our program offerings page.
